Jaxon’s Childrens hospital dr. appt Dec 10th 2008
People want to know how Jaxons doctors appointment went today, and let me tell you this is the hardest thing for me to write. So if it doesn't make since just ask and I will try to make since of it.
Well to start things off Josh and I got up at 4 am to get us and the kids ready to drive to Denver Colorado for Jaxons 1 year check up that was to start at 8 am. So we got there right close to 8 am and got all checked in. Josh hung out with the boys, because Ashton has a scratch on his head so they wouldn't let the boys go to the day care thing they have there.
So Jaxon and I headed to Radiology, he had a ultrasound at 8:30. Which got over about 8:50. Then we had to wait for the VCUG which was suppose to begin at 9:00, but there was an emergency of some sort so we were just waiting around.
Finally at 10:00 they got us back for the VCUG. For those of you that know anything about what happened when he was first there, you know they had a really hard to putting a catheter in him. I stopped counting at 12 times they tried. Well this time they were able to get the catheter in him the first time! I was very pleased to say the least. Well Jaxon didn't like the fact that I had to hold him down so they could get clear pictures of him. He was one hella pissed off baby. But it went smoothly though which is great.
Well its 11:00 the next stop was our Consultation with Dr. Jeff Cambell. It was suppose to be at 9:30, oh well. Well we get up to his office and we start to discuss what is going on with Jaxon if he is getting better or worse or staying the same, also what our plan of action will be.
Well come to find out that he is NOT getting better that he is actually if anything slowly getting worse. So we discussed what our options were, and it was up to Josh and I what we as the parents felt like we needed to have done.
1. We could stay as we have been for the last year and making sure Jaxon takes is Primsol every night before bed, and watch for UTI and any type of infection. Which could cause his kidneys to shut down again. And keep doing this until we see it as an emergency to do something.
2. Same as the above but check him every 6 months to see how he is doing.
3. Inject this dye into his utters (which are the tubes that connect the kidneys to the bladder) and hope that it will fix them. There is about a 70% chance this will work on him. This is a day surgery, should be released later that day.
4. Admit him into the hospital and do surgery. What they would do is go in a surgically remove the utters and reattach them higher up on the bladder, which will stop the Renal Reflex. He should only be in the hospital a few days, but there is a 98.9 % chance this will stop the Reflex for good. Which means no more medicine every night. No more worrying nothing.
Well we talked all of the options over with him and Dr. Cambell Josh and I all agree that with how Jaxon is just getting worse and not showing signs of improvement, that the likely hood of him out growing this is slim to none. That waiting a year to see if it goes away could only cause more damage to his kidneys. Which could in turn cause his kidneys to totally shut down and then we would need a transplant. Also as he gets older he is going to start to remember what happens. Also we have potty training coming on, also we have to consider when they are younger they heal so fast.
So with all of these to consider we are going to perform surgery on Jaxons kidneys on March 10th 2009. I do not know a time yet, I will not know until a few weeks a head of time.
I truly think this is what is best for my son, and the best chance that he can live a normal life. Were it won't make it harder to potty train him. He won't have to take medacine everynight. It wont cause more damage to the kidneys. Also he will be to young to remember going threw it. As well as there is not much pain involved after the surgery. They said it could be managed with over the counter tylonol.
So like I just said I really think this is the best path for my son.
Friday, December 12, 2008
Tuesday, May 13, 2008
My Little inchworm
We knew it was coming any day now... I was still way excited when he started though. Thank good nees we got it on video... My little inchworm...
Tuesday, April 29, 2008
My Mom (Jacki) hospital stay.
On Monday, April 21, 2008 at around 7:00 pm, my father Dave took my Mom to the hospital because she was having severe pain in her back that was accompanied by a fever and flu like symptoms. My sister, Kim, came to the hospital at approximately 10:00pm.
At around 2:30am (Tuesday, April 22nd) they admitted her to the 4th floor of the hospital. They hooked her up to an IV that had a medication in it that was 8 times stronger than morphine. She was able to control the amount that she would receive by pushing a button every 8 mins. That still was not enough to make her ease the pain she was having, so they doubled her dose and upped her increments to every 6 minutes. The level of pain she was having was a 10. After running some blood work they were able to see that she had Discitis (Hymophilous influenza) is the type she has. Which can be fatal in some people if not caught early enough in the stages.
They were afraid that the infection had spread to her bones. So on Tuesday afternoon, they did a biopsy of the disc in her vertebra and the bone itself. This procedure was EXTREMELY painful to my mother.After doing blood work everyday, and through the CT Scans and MRI's, they concluded that the infection was spread throughout her entire body. The Dr. Nathan could not stress enough that this is a very strong and very painful illness. Now that they knew what kind of infection that mom had/has, they are able to treat it with the exact antibiotic (Recephin) that would conquer the infection.
They keep taking blood tests everyday and yesterday was the first day that they started to see a decrease in the infection. Which is EXCELLENT since up until yesterday, her levels were increasing, not decreasing like we want it to.They will not release my mother until she is able to function on her own, because they are afraid that she might hurt herself. Which if she did hurt herself, she would be in the hospital for a lot longer of a time next time. Also because they say my Dad will not be able to take care of her like they will be able to there. So they are going to move her up to the 6th floor (Rehab) tomorrow. Which I think will be better for her. She will be there roughly at least a week.
Her stomach pain and nausea are gone, and her pain level is now down to a 5-6 from a 10.(and for those of you that know her well, know that she is VERY strong and can handle pain very well, so for her to have a level 10 pain, must be unbearable).
They are planning on putting a pick line in her arm so she can receive her antibiotics that way at home (since she needs to receive them from an IV and not by pills). She will be on the antibiotics for about 6 weeks at home.
They tested her albumin level (nutrient level) and it was a 1.9 which is way low for what it should be. Dr. Nathan is really pushing her to eat. Which I can understand why its so low, she hasn't eaten in almost a week. She doesn't usually eat three times a day, but, she is eating. She had three bites of scrambled eggs, some Ensure and juice today. I am way proud of how hard she is trying to get better.
I will try to keep you updated as to how she is doing as I get updates. Just please pray that my mom will have a speedy recovery.
At around 2:30am (Tuesday, April 22nd) they admitted her to the 4th floor of the hospital. They hooked her up to an IV that had a medication in it that was 8 times stronger than morphine. She was able to control the amount that she would receive by pushing a button every 8 mins. That still was not enough to make her ease the pain she was having, so they doubled her dose and upped her increments to every 6 minutes. The level of pain she was having was a 10. After running some blood work they were able to see that she had Discitis (Hymophilous influenza) is the type she has. Which can be fatal in some people if not caught early enough in the stages.
They were afraid that the infection had spread to her bones. So on Tuesday afternoon, they did a biopsy of the disc in her vertebra and the bone itself. This procedure was EXTREMELY painful to my mother.After doing blood work everyday, and through the CT Scans and MRI's, they concluded that the infection was spread throughout her entire body. The Dr. Nathan could not stress enough that this is a very strong and very painful illness. Now that they knew what kind of infection that mom had/has, they are able to treat it with the exact antibiotic (Recephin) that would conquer the infection.
They keep taking blood tests everyday and yesterday was the first day that they started to see a decrease in the infection. Which is EXCELLENT since up until yesterday, her levels were increasing, not decreasing like we want it to.They will not release my mother until she is able to function on her own, because they are afraid that she might hurt herself. Which if she did hurt herself, she would be in the hospital for a lot longer of a time next time. Also because they say my Dad will not be able to take care of her like they will be able to there. So they are going to move her up to the 6th floor (Rehab) tomorrow. Which I think will be better for her. She will be there roughly at least a week.
Her stomach pain and nausea are gone, and her pain level is now down to a 5-6 from a 10.(and for those of you that know her well, know that she is VERY strong and can handle pain very well, so for her to have a level 10 pain, must be unbearable).
They are planning on putting a pick line in her arm so she can receive her antibiotics that way at home (since she needs to receive them from an IV and not by pills). She will be on the antibiotics for about 6 weeks at home.
They tested her albumin level (nutrient level) and it was a 1.9 which is way low for what it should be. Dr. Nathan is really pushing her to eat. Which I can understand why its so low, she hasn't eaten in almost a week. She doesn't usually eat three times a day, but, she is eating. She had three bites of scrambled eggs, some Ensure and juice today. I am way proud of how hard she is trying to get better.
I will try to keep you updated as to how she is doing as I get updates. Just please pray that my mom will have a speedy recovery.
Thursday, February 21, 2008
Our weekend vacation
Well Josh and I when't to spend this last weekend with my sister in law and her family... Man did we have fun!!!First we whent to my neices Gymnastics meet. She Got 1st!!! Then when we were finnished there we whent up to Salt Lake City and whent shopping. Have any of you been in a Cabelas before? Talk about one cool store. They have an aquarium there for the kids to go look at fish. They were really huge! Then I got a $300.00 coat for $100.00 it was on clearnce... I was super excited my mom would want it bad... But she isnt getting it HA!!! Well when we were dont there we whent to a out side mall called Three Gateway Mall. That was fun we ate at the California Pizza Kitchen YUMMY!!! Well it was going on 9:30PM and we desided to go to the Surgar House Movie theature... Dollar Theature... I have never taken my kids to a movie before so I was a bit worried on how they would act. But they did really good watched the movie the whole time didn't talk and goof of at all. We watched Enchanted it was a really cute movie the kids liked it. Gage said he NEEDS his Grandma to buy it for him... LOL... Then he asked if we could get a BIG TV like that at our house... I told him no sorry hun...Well then it was midnight and we had to drive for an hour and hafe to get back to Evanston to my sister in laws. Then next morning we got up packed up and Whent to Bear Lake my sister in law has time shares there so we whent to stay in there Condo... WOW talk about nice. They didnt want to waste there points so they choose to pay instead and it only cost $55.00 for the night... Well we whent swimming that night that was fun, Then we whent back to the room and watched movies and ate dinner. Then the kids whent to bed and the adults played games. Well the next morning we packed everything up in the cars then whent snowmachining... YEA I GOT MY HUSBAND TO GO OUT IN TO THE SNOW...The boys loved it all three of them!!! Well when we were finnished we whent back to Candis house then headed home. WOW that was a long but very fun weekend!!!
Friday, February 8, 2008
Jaxon's Childrens Hospital Dr. Appt
Friday, February 08, 2008
Jaxon Childrens Hospital Dr. Appt
Well as most of you all know by now, Jaxon my third son who was born on October 27, 2007 was rushed to Denver Co (Aurua) Children's Hospital for kidney failure...
While we were there we found out the reason he went into kidney failure is because he had a valve movement (poop) that got on top of his Urethra (the top of the Penis). Which then went into his bladder which caused E-Coli and a UTI... So since he has reflex it caused those two things to go up into his kidneys which then in turn caused his Kidneys to fail... WAY SCARY FOR A MOM!!! Well after two very long and tiring weeks they released us to go home as long as he stayed on medicine once a day until his next dr. appt.
Well his next appointment was yesterday February 6, 2008... Lets talk about a very long and tiring day... Had the joy of getting up most of the night between Ashton and Jaxon... I believe I got a total of 2 hours sleep (and no that was not continues sleep). Well his appointment was at 9:00 I had to drive there that morning. So I got up at 4:00 AM, and took my shower got me and the three boys ready. Then it was off to Denver for us...
I didn't want to be late so I gave my self more than enough time to get there. Thank goodness the winds were blowing hard nothing new for around here but it still sucked. I ran into some traffic and construction but all and all not bad for time.
Made it there 30 min before my appointment which was way good since I had to go threw security and get checked in. After Me and the boys were threw security we had to go get checked in for his appointments. That is when I found out that the Creative Play Center (Day Care free) was open!!! Yea so I haul the boys over there and they had a blast... Then I was off, had to hurry now my appointment is to start in 3 min!!!
First stop Radiology, VCUG was performed which revealed bilateral vesicoureteral reflux grade III on the right and grade IV on the left. With a normal Urethra and bladder contour A RUS showed stable grade 1-2 hydronephrosis on the right grade 1 on the left...
I don't know what all of that means but I thought for all you smarties out there you would like it... What they told me was that his Reflux has gotten worse and that I have to be very careful with hygiene and with his antibiotics (which he has to take every night before bedtime).
They also told me that if he shows any sign of a UTI I am to get him to the DR. right then. If it all ready reflux in to his kidneys they will have to RUSH him via life flight to Children's again... You should have seen my face, I guess it was pure shock...
They also performed a Ultrasound of the kidneys which showed slight swelling of the kidneys but nothing to be alarmed about at this time.
They wan't to see Jaxon back in one year (or sooner if his heath changes) to do a repeat VCUG and RUS (ultrasound). We then discussed the surgical options of open repair and endoscic Deflux injection. What these are is one of them is an injection that they put in his uterers which are the tubes that run from his bladder to his kidneys. This injection will or should help them get stronger so he wont reflex up in to them. This procedure is normal an outpatint surgery and should be released the same day as long as not complications a rise. The second option is actully a surgery were they will go in and remove the utters (tubes from the bladder to the kidneys) and reinstal some were else on the bladder... He will actully be hospitalized any were from 1 week to 4 weeks depending on how sever his case is. The Doctors say with his case 0 being no reflux and 5 being the worse he is a 4.5.......... Which leads them to believe more than likely we will be performing surgery.
On top of all of this going threw my mind the doctor then says How are your other boys? I say good. He then states that he is concerned that they may also have the same problem and wants Gage and Ashton tested. I look at him like he is freaking kidding. I said are you freaking kidding me??? You really think you can get GAGE and ASHTON to stay still while they run tests threw there Penis!!! You have got to be kidding me. There is no way you can make any of them stay still long enough to get them test Gage especialy! The doctor then explained that with Jaxon levels being so high there is a good chance that his brothers have it as well and he would rather catch it and not have it damage there kidneys as well... Damn it now I get to deal with trying to get them tested... That should be a fun one...
Well that was my busy day. I am glad it wasnt any worse that what it is. I am ready for my little angel to be healthy we have the happy now we just need to get healthy...
Jaxon Childrens Hospital Dr. Appt
Well as most of you all know by now, Jaxon my third son who was born on October 27, 2007 was rushed to Denver Co (Aurua) Children's Hospital for kidney failure...
While we were there we found out the reason he went into kidney failure is because he had a valve movement (poop) that got on top of his Urethra (the top of the Penis). Which then went into his bladder which caused E-Coli and a UTI... So since he has reflex it caused those two things to go up into his kidneys which then in turn caused his Kidneys to fail... WAY SCARY FOR A MOM!!! Well after two very long and tiring weeks they released us to go home as long as he stayed on medicine once a day until his next dr. appt.
Well his next appointment was yesterday February 6, 2008... Lets talk about a very long and tiring day... Had the joy of getting up most of the night between Ashton and Jaxon... I believe I got a total of 2 hours sleep (and no that was not continues sleep). Well his appointment was at 9:00 I had to drive there that morning. So I got up at 4:00 AM, and took my shower got me and the three boys ready. Then it was off to Denver for us...
I didn't want to be late so I gave my self more than enough time to get there. Thank goodness the winds were blowing hard nothing new for around here but it still sucked. I ran into some traffic and construction but all and all not bad for time.
Made it there 30 min before my appointment which was way good since I had to go threw security and get checked in. After Me and the boys were threw security we had to go get checked in for his appointments. That is when I found out that the Creative Play Center (Day Care free) was open!!! Yea so I haul the boys over there and they had a blast... Then I was off, had to hurry now my appointment is to start in 3 min!!!
First stop Radiology, VCUG was performed which revealed bilateral vesicoureteral reflux grade III on the right and grade IV on the left. With a normal Urethra and bladder contour A RUS showed stable grade 1-2 hydronephrosis on the right grade 1 on the left...
I don't know what all of that means but I thought for all you smarties out there you would like it... What they told me was that his Reflux has gotten worse and that I have to be very careful with hygiene and with his antibiotics (which he has to take every night before bedtime).
They also told me that if he shows any sign of a UTI I am to get him to the DR. right then. If it all ready reflux in to his kidneys they will have to RUSH him via life flight to Children's again... You should have seen my face, I guess it was pure shock...
They also performed a Ultrasound of the kidneys which showed slight swelling of the kidneys but nothing to be alarmed about at this time.
They wan't to see Jaxon back in one year (or sooner if his heath changes) to do a repeat VCUG and RUS (ultrasound). We then discussed the surgical options of open repair and endoscic Deflux injection. What these are is one of them is an injection that they put in his uterers which are the tubes that run from his bladder to his kidneys. This injection will or should help them get stronger so he wont reflex up in to them. This procedure is normal an outpatint surgery and should be released the same day as long as not complications a rise. The second option is actully a surgery were they will go in and remove the utters (tubes from the bladder to the kidneys) and reinstal some were else on the bladder... He will actully be hospitalized any were from 1 week to 4 weeks depending on how sever his case is. The Doctors say with his case 0 being no reflux and 5 being the worse he is a 4.5.......... Which leads them to believe more than likely we will be performing surgery.
On top of all of this going threw my mind the doctor then says How are your other boys? I say good. He then states that he is concerned that they may also have the same problem and wants Gage and Ashton tested. I look at him like he is freaking kidding. I said are you freaking kidding me??? You really think you can get GAGE and ASHTON to stay still while they run tests threw there Penis!!! You have got to be kidding me. There is no way you can make any of them stay still long enough to get them test Gage especialy! The doctor then explained that with Jaxon levels being so high there is a good chance that his brothers have it as well and he would rather catch it and not have it damage there kidneys as well... Damn it now I get to deal with trying to get them tested... That should be a fun one...
Well that was my busy day. I am glad it wasnt any worse that what it is. I am ready for my little angel to be healthy we have the happy now we just need to get healthy...
Subscribe to:
Posts (Atom)
