Jaxon's Childrens Hospital Dr. Appt

Friday, February 08, 2008
Jaxon Childrens Hospital Dr. Appt
Well as most of you all know by now, Jaxon my third son who was born on October 27, 2007 was rushed to Denver Co (Aurua) Children's Hospital for kidney failure...
While we were there we found out the reason he went into kidney failure is because he had a valve movement (poop) that got on top of his Urethra (the top of the Penis). Which then went into his bladder which caused E-Coli and a UTI... So since he has reflex it caused those two things to go up into his kidneys which then in turn caused his Kidneys to fail... WAY SCARY FOR A MOM!!! Well after two very long and tiring weeks they released us to go home as long as he stayed on medicine once a day until his next dr. appt.
Well his next appointment was yesterday February 6, 2008... Lets talk about a very long and tiring day... Had the joy of getting up most of the night between Ashton and Jaxon... I believe I got a total of 2 hours sleep (and no that was not continues sleep). Well his appointment was at 9:00 I had to drive there that morning. So I got up at 4:00 AM, and took my shower got me and the three boys ready. Then it was off to Denver for us...
I didn't want to be late so I gave my self more than enough time to get there. Thank goodness the winds were blowing hard nothing new for around here but it still sucked. I ran into some traffic and construction but all and all not bad for time.
Made it there 30 min before my appointment which was way good since I had to go threw security and get checked in. After Me and the boys were threw security we had to go get checked in for his appointments. That is when I found out that the Creative Play Center (Day Care free) was open!!! Yea so I haul the boys over there and they had a blast... Then I was off, had to hurry now my appointment is to start in 3 min!!!
First stop Radiology, VCUG was performed which revealed bilateral vesicoureteral reflux grade III on the right and grade IV on the left. With a normal Urethra and bladder contour A RUS showed stable grade 1-2 hydronephrosis on the right grade 1 on the left...
I don't know what all of that means but I thought for all you smarties out there you would like it... What they told me was that his Reflux has gotten worse and that I have to be very careful with hygiene and with his antibiotics (which he has to take every night before bedtime).
They also told me that if he shows any sign of a UTI I am to get him to the DR. right then. If it all ready reflux in to his kidneys they will have to RUSH him via life flight to Children's again... You should have seen my face, I guess it was pure shock...
They also performed a Ultrasound of the kidneys which showed slight swelling of the kidneys but nothing to be alarmed about at this time.
They wan't to see Jaxon back in one year (or sooner if his heath changes) to do a repeat VCUG and RUS (ultrasound). We then discussed the surgical options of open repair and endoscic Deflux injection. What these are is one of them is an injection that they put in his uterers which are the tubes that run from his bladder to his kidneys. This injection will or should help them get stronger so he wont reflex up in to them. This procedure is normal an outpatint surgery and should be released the same day as long as not complications a rise. The second option is actully a surgery were they will go in and remove the utters (tubes from the bladder to the kidneys) and reinstal some were else on the bladder... He will actully be hospitalized any were from 1 week to 4 weeks depending on how sever his case is. The Doctors say with his case 0 being no reflux and 5 being the worse he is a 4.5.......... Which leads them to believe more than likely we will be performing surgery.
On top of all of this going threw my mind the doctor then says How are your other boys? I say good. He then states that he is concerned that they may also have the same problem and wants Gage and Ashton tested. I look at him like he is freaking kidding. I said are you freaking kidding me??? You really think you can get GAGE and ASHTON to stay still while they run tests threw there Penis!!! You have got to be kidding me. There is no way you can make any of them stay still long enough to get them test Gage especialy! The doctor then explained that with Jaxon levels being so high there is a good chance that his brothers have it as well and he would rather catch it and not have it damage there kidneys as well... Damn it now I get to deal with trying to get them tested... That should be a fun one...
Well that was my busy day. I am glad it wasnt any worse that what it is. I am ready for my little angel to be healthy we have the happy now we just need to get healthy...